Which of the following statements best reflects the outcome of communicating about death with a dying person?

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Consumer outcome

(1) I am a partner in ongoing assessment and planning that helps me get the care and services I need for my health and well-being.

Organisation statement

(2) The organisation undertakes initial and ongoing assessment and planning for care and services in partnership with the consumer. Assessment and planning has a focus on optimising health and well-being in accordance with the consumer’s needs, goals and preferences.

Assessment against this Standard

For each of the requirements, organisations need to demonstrate that they:

  • understand the requirement

  • apply the requirement, and this is clear in the way they provide care and services

  • monitor how they are applying the requirement and the outcomes they achieve

  • review outcomes and adjust their practices based on these reviews to keep improving.

1. Hill PT. Treating the dying patient: the challenge for medical education. Arch Intern Med. 1995;155:1265–9. [PubMed] [Google Scholar]

2. Mermann AC, Gunn DB, Dickinson GE. Learning to care for the dying. Acad Med. 1991;66:32–5. [PubMed] [Google Scholar]

3. Tulsky JA, Chesney MA, Lo B. See one, do one, teach one? House staff experience discussing do-not-resuscitate orders. Arch Intern Med. 1996;156:1285–9. [PubMed] [Google Scholar]

4. Callahan D. Pursuing a peaceful death. Hastings Cent Rep. 1993;23:33–8. [PubMed] [Google Scholar]

5. Miles SH, Koepp R, Weber EP. Advance end-of-life treatment planning; a research review. Arch Intern Med. 1996;156:1062–8. [PubMed] [Google Scholar]

6. Reilly BM, Magnussen CR, Ross J, Ash J, Papa L, Wagner M. Can we talk? inpatient discussions about advance directives in a community hospital. Arch Intern Med. 1994;154:2299–308. [PubMed] [Google Scholar]

7. Smucker WD, Ditto PH, Moore KA, Druley JA, Danks JH, Townsend A. Elderly oupatients respond favorably to a physician-initiated advance directive discussion. J Am Board Fam Pract. 1993;6:473–82. [PubMed] [Google Scholar]

8. Emanuel LL, Barry DJ, Stoeckle JD, Ettelson LM, Emanuel EJ. Advance directives for medical care; a case for greater use. N Engl J Med. 1991;324:889–95. [PubMed] [Google Scholar]

9. Lo B, McLeod GA, Saika G. Patient attitudes to discussing life-sustaining treatment. Arch Intern Med. 1986;146:1613–5. [PubMed] [Google Scholar]

10. Tulsky JA, Fischer GS, Rose MR, Arnold RM. Opening the black box: how do physicians communicate about advance directives? Ann Intern Med. 1998;129:441–9. [PubMed] [Google Scholar]

11. Lynn J. An 88-year-old woman facing the end of life. JAMA. 1997;277:1633–40. [PubMed] [Google Scholar]

12. Lynn J, Teno JM, Phillips RS, et al. Perceptions by family members of the dying experience of older and seriously ill patients. Ann Intern Med. 1997;126:97–106. [PubMed] [Google Scholar]

13. Byock I. Dying Well: Peace and Possibilities at the End of Life. New York, NY: Riverhead Books; 1997. [Google Scholar]

14. Singer PA, Marin DK, Kelner M. Quality end-of-life care: patients' perspectives. JAMA. 1999;281:163–8. [PubMed] [Google Scholar]

15. Johnston SC, Pfeifer MP, McNutt R, for the End of Life Study Group The discussion about advance directives: patient and physician opinions regarding when and how it should be conducted. Arch Intern Med. 1995;155:1025–30. [PubMed] [Google Scholar]

16. Blustein J. The family in medical decisionmaking. Hastings Cent Rep. 1993;23:6–13. [PubMed] [Google Scholar]

17. Reust CE, Mattingly S. Family involvement in medical decision making. Fam Med. 1996;28:39–45. [PubMed] [Google Scholar]

18. Gross MD. What do patients express as their preferences in advance directives. Arch Intern Med. 1998;158:363–5. [PubMed] [Google Scholar]

19. Hammes BJ, Rooney BL. Death and end-of-life planning in one midwestern community. Arch Intern Med. 1998;158:383–390. [PubMed] [Google Scholar]

20. Emanuel L. The privilege and the pain. Ann Intern Med. 1995;122:797–8. [PubMed] [Google Scholar]

21. Emanuel LL, Danis M, Pearlman RA, Singer PA. Advance care planning as a process: structuring the discussions in practice. J Am Geriatr Soc. 1995;43:440–446. [PubMed] [Google Scholar]

22. Tonelli MR. Pulling the plug on living wills: a critical analysis of advance directives. Chest. 1996;110:816–22. [PubMed] [Google Scholar]

23. Weissman JS, Haas JS, Fowler FJ, et al. The stability of preferences for life-sustaining care among persons with AIDS in the Boston health study. Med Decis Making. 1999;19:16–26. [PubMed] [Google Scholar]

24. Mazur DJ, Hickam DH. The effect of physicians' explanations on patients' treatment preferences. Med Decis Making. 1994;14:255–8. [PubMed] [Google Scholar]

25. Tulsky JA, Chesney MA, Lo B. How do medical residents discuss resuscitation with patients? J Gen Intern Med. 1995;10:436–42. [PubMed] [Google Scholar]

26. Fischer GS, Tulsky JA, Rose MR, Siminoff LA, Arnold RM. Patient knowledge and physician predictions of treatment preferences after discussion of advance directives. J Gen Intern Med. 1998;13:447–54. [PMC free article] [PubMed] [Google Scholar]

27. Weeks JC, Cook EF, O'day SJ, et al. Relationship between cancer patients' predictions of prognosis and their treatment preferences. JAMA. 1998;279:1709–14. [PubMed] [Google Scholar]

28. Smith TJ, Swisher K. Telling the truth about terminal cancer. JAMA. 1998;279:1746–8. [PubMed] [Google Scholar]

29. Giordano B. Ensuring the readability of patient education materials is one way to demonstrate perioperative nurse's value. AORN J. 1996;63:699. [PubMed] [Google Scholar]

30. Weiss BD, Coyne C. Communicating with patients who cannot read. N Engl J Med. 1983;309:569–76. [Google Scholar]

31. Davidoff F. Weighing the alternatives: lessons from the paradoxes of alternative medicine. Ann Intern Med. 1998;129:1068–70. [PubMed] [Google Scholar]

32. Frankl D, Oye RK, Bellamy PE. Attitudes of hospitalized patients toward life support: a survey of 200 medical inpatients. Am J Med. 1989;86:645–8. [PubMed] [Google Scholar]

33. Murphy DJ, Burrow D, Santilli S, et al. The influence of probabilities of survival on patients' preferences regarding cardiopulmonary resuscitation. N Engl J Med. 1994;330:545–9. [PubMed] [Google Scholar]

34. Miller DL, Jahnigen DW, Gorbien MJ, Simbarti L. Cardiopulmonary resuscitation: how useful? Arch Intern Med. 1992;152:578–82. [PubMed] [Google Scholar]

35. Miller DL, Gorbien MJ, Simbartl LA, Jahnigen DW. Factors influencing physicians in recommending in-hospital cardiopulmonary resuscitation. Arch Intern Med. 1993;153:1999–2003. [PubMed] [Google Scholar]

36. Karetzky M, Zubair M, Parikh J. Cardiopulmonary resuscitation in intensive care unit and non-intensive care unit patients: immediate and long-term survival. Arch Intern Med. 1995;155:1277–80. [PubMed] [Google Scholar]

37. Bialecki L, Woodward RS. Predicting death after CPR: experience at a nonteaching community hospital with a full-time critical care staff. Chest. 1995;108:1009–17. [PubMed] [Google Scholar]

38. Taffet GE, Teasdale TA, Luchi RJ. In-hospital cardiopulmonary resuscitation. JAMA. 1988;260:2069–72. [PubMed] [Google Scholar]

39. Landry FJ, Parker JM, Phillips YY. Outcome of cardiopulmonary resuscitation in the intensive care setting. Arch Intern Med. 1992;152:2305–8. [PubMed] [Google Scholar]

40. Dyer KA. Reshaping our views of death and dying. JAMA. 1992;267:1265–70. [PubMed] [Google Scholar]


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A Physician's Guide to Talking AboutEnd-of-Life Care

Step 1. Initiating discussion
Establish a supportive relationship with patient and family.
Appoint a surrogate decision maker.
Elicit general thoughts about end-of-life preferences. Gobeyond stock phrases with probing questions.
Step 2. Clarifying prognosis
Be direct, yet caring.
Be truthful, but sustain spirit.
Use simple everyday language.
Step 3. Identifying end-of-life goals
Facilitate open discussion about desired medical care and remaining life goals.
Recognize that as death nears, most patients share similar goals; maximizing time with family and friends, avoiding hospitalization and unnecessary procedures, maintaining functionality, and minimizing pain.
Step 4. Developing a treatment plan
Provide guidance in understanding medical options.
Make recommendations regarding appropriate treatment.
Clarify resuscitation orders.
Initiate timely palliative care, when appropriate.