How long can you live with CHF Stage 4?

  1. Lunney JR, Lynn J, Foley DJ, Lipson S, Guralnik JM. Patterns of functional decline at the end of life. JAMA. 2003;289:2387–92. doi:10.1001/jama.289.18.2387.

    Article  PubMed  Google Scholar 

  2. Murtagh FE, Preston M, Higginson I. Patterns of dying: palliative care for non-malignant disease. Clin Med. 2004;4:39–44.

    CAS  Article  Google Scholar 

  3. Nordgren L, Sörensen S. Symptoms experienced in the last six months of life in patients with end-stage heart failure. Eur J Cardiovasc Nurs. 2003;2:213–7. doi:10.1016/S1474-515(03)00059-8.

    Article  PubMed  Google Scholar 

  4. McMurray JJ, Stewart S. Epidemiology, aetiology, and prognosis of heart failure. Heart. 2000;83:596–602. doi:10.1136/heart.83.5.596.

    CAS  Article  PubMed  PubMed Central  Google Scholar 

  5. Krause O, Hager K. Herzinsuffizienz im Alter. Geriatriereport. 2013;4:34–7.

    Google Scholar 

  6. Murray SA, Boyd K, Kendall M, Worth A, Benton TF, Clausen H. Dying of lung cancer or cardiac failure: prospective qualitative interview study of patients and their carers in the community. BMJ. 2002;325:929. doi:10.1136/bmj.325.7370.929.

    Article  PubMed  PubMed Central  Google Scholar 

  7. Pantilat SZ, Steimle AE. Palliative care for patients with heart failure. JAMA. 2004;291:2476–82. doi:10.1001/jama.291.20.2476.

    CAS  Article  PubMed  Google Scholar 

  8. Small N, Barnes S, Gott M, Payne S, Parker C, Seamark D, et al. Dying, death and bereavement: a qualitative study of the views of carers of people with heart failure in the UK. BMC Palliative Care. 2009;8:6. doi:10.1186/1472-684X-8-6.

    Article  PubMed  PubMed Central  Google Scholar 

  9. Gibbs ME, Addington-Hall J, Gibbs JSR. Dying from heart failure: lessons from palliative care. BMJ. 1998;317:961–2. doi:10.1136/bmj.317.7164.961.

    CAS  Article  PubMed  PubMed Central  Google Scholar 

  10. ESC Guidelines. Guidelines for the diagnosis and treatment of chronic heart failure. Eur Soc Cardiol 2005. [http://eurheartj.oxfordjournals.org/content/ehj/26/11/1115.full.pdf]. Accessed 13 Oct 2015.

  11. Davies E, Higginson IJ. Better palliative care for older people. Copenhagen: World Health Organization Europe; 2004.

    Google Scholar 

  12. EAPC White Paper on Palliative Care. Part 1: European Journal of Palliative Care 2009, 16(6):278–289; Part 2: European Journal of Palliative Care 2010, 17(1):22–33. [http://www.eapcnet.eu/LinkClick.aspx?fileticket=f63pXXzVNEY%3d&tabid=735]. Accessed 13 Oct 2015.

  13. Gibbs JSR, McCoy ASM, Gibbs LME, Rogers AE, Addington-Hall JM. Living with and dying from heart failure: the role of palliative care. Heart. 2002;88(Suppl II):ii36–9.

    PubMed  PubMed Central  Google Scholar 

  14. Thorns AR, Gibbs LM, Gibbs JS. Management of severe heart failure by specialist palliative care. Heart. 2001;85:93–3.

    CAS  Article  PubMed  PubMed Central  Google Scholar 

  15. Boyd KJ, Worth A, Kendall M, Pratt R, Hockley J, Denvir M, et al. Making sure services deliver for people with advanced heart failure: a longitudinal qualitative study of patients, family carers, and health professionals. Palliat Med. 2009;23:767. doi:10.1177/0269216309346541.

    Article  PubMed  Google Scholar 

  16. Patton MQ. Purposive Sample. In: Patton MQ (2012) Qualitative health research. 3.ed. London/ New Dehli: Sage Publications: 230–242.

  17. Rockwood K, Song X, MacKnight C, Bergman H, Hogan DB, McDowell I, et al. A global clinical measure of fitness and frailty in elderly people. CMAJ. 2005;173(5):489–95. doi:10.1503/cmaj.050051.

    Article  PubMed  PubMed Central  Google Scholar 

  18. Schneider N, Oster P, Hager K, Klindtworth K. Identifying elderly patients with advanced heart failure at the end of life. Int J Cardiol. 2011;153:198–9. doi:10.1016/j.ijcard.2011.09.018.

    Article  Google Scholar 

  19. Bleidorn J, Pahlow H, Klindtworth K, Schneider N. End-of-life care: experiences and expectations of bereaved relatives. Dtsch Med Wochenschr. 2012;137:1343–8. doi:10.1055/s-0032-1305045.

    CAS  Article  PubMed  Google Scholar 

  20. Schumacher M, Schneider N. Ältere Menschen am Lebensende – Versorgungssituation und Verbesserungsbedarf aus der Perspektive von Hinterbliebenen. Z Palliativmed. 2010;11:1–7. doi:10.3238/zfa.2012.00138-00139.

    Article  Google Scholar 

  21. Strauss A, Corbin J. Grounded Theory: Grundlagen Qualitativer Sozialforschung. Weinheim: Beltz Psychologie Verlags Union; 1996.

    Google Scholar 

  22. Maxqda [http://www.maxqda.de/]. Accessed 13 Oct 2015.

  23. Schaeffer D, Moers M. Survival strategies – a phase model on the character of coping with chronic illness. Pflege & Gesellschaft. 2008;13(H.1):12.

    Google Scholar 

  24. Berghammer M, Dellborg M, Ekmann I. Young adults experiences of living with congenital heart disease. Int J Cardiol. 2006;110:340–7. doi:10.1016/j.ijcard.2005.08.006.

    Article  PubMed  Google Scholar 

  25. Barnes S, Gott M, Payne S, Seamark D, Parker C, Gariballa S, et al. Communication in heart failure: perspectives from older people and primary care professionals. Health Soc Care Community. 2006;14(6):482–90.

    Article  PubMed  Google Scholar 

  26. Gärtner J, Simon S, Voltz R. Palliativmedizin und fortgeschrittene, nicht heilbare Erkrankungen. Internist. 2011;52:20–7. doi:10.1007/s00108-010-2690-6.

    Article  Google Scholar 

  27. Varkey B. Unfulfilled palliative care needs of chronic obstructive pulmonary disease patients. Curr Opin Pulm Med. 2006;12:103–5. doi:10.1097/01.mcp.0000208448.65478.8f.

    PubMed  Google Scholar 

  28. Wotton K, Borbasi S, Redden M. When all else failed: Nurses’ perception of factors influencing palliative care for patients with end-stage heart failure. J Caridovasc Nurs. 2005;20(1):18–25.

    Article  Google Scholar 

  29. Low J, Pattenden J, Candy B, Beattie JM, Jones L. Palliative care in advanced heart failure: an international review of the perspectives of recipients and health professionals on care provision. J Card Fail. 2011;17(3):231–52.

    Article  PubMed  Google Scholar 

  30. Engeser P, Hermann K, Szecsenyi J, Peters-Klimm F. Symptom control and place of death in palliative cancer patients in primary care : Results of the controlled PAMINO evaluation study. Schmerz 2014 [ahead of print] doi:10.1007/s00482-014-1464-9.

  31. Fischer S, Min SJ, Cervantes L, Kutner J. Where do you want to spend your last days of life? Low concordance between preferred and actual site of death among hospitalized adults. J Hosp Med. 2013;8(4):178–83. doi:10.1002/jhm.2018.

    Article  PubMed  PubMed Central  Google Scholar 

  32. Clayton JM, Butow PN, Tattersall MH. The needs of terminally ill cancer patients versus those of caregivers for information regarding prognosis and end-of-life issues. Cancer. 2005;103:1957–64. doi:10.1002/cncr.21010.

    Article  PubMed  Google Scholar 

  33. Eibach U. Autonomie, Menschenwürde und Lebensschutz in der Geriatrie und Psychiatrie. Münster: LIT Verlag; 2005. p. 24.

    Google Scholar 

  34. van Oorschot B, Hausmann C, Köhler N, Leppert K, Schweitzer S, Steinbach K, et al. Patienten als Partner in der letzten Lebensphase. Bundesgesundheitsblatt. 2004;47(10):992–9. doi:10.1007/s00103-004-0906-4.

    Article  Google Scholar 

  35. Klindtworth K, Schneider N, Bleidorn J. Wie erleben Patienten mit unheilbaren, fortgeschrittenen Erkrankungen ihre häusliche Versorgung? Z Allg Med. 2013;89(4):159–64.

    Google Scholar 

  36. Klindtworth K, Pestinger M, Oster P, Hager K, Schneider N. Heart Failure in the Oldest Old: A Qualitative Case Study on Patients’ Perception of and communication about Illness and Prognosis. J Palliative Care Med. 2012;2:134. doi:10.4172/2165-7386.1000134.

    Article  Google Scholar 

  37. Schellinger S, Sidebottom A, Briggs L. Disease specific advance care planning for heart failure patients: implementation in a large health system. J Palliat Med. 2011;14:1224–30. doi:10.1089/jpm.2011.0105.

    Article  PubMed  Google Scholar 

  38. Thomas K et al. Gold Standard Framework (GSF) The GSF Prognostic Indicator Guidance 2014 [http://www.goldstandardsframework.org.uk/cd-content/uploads/files/General%20Files/Prognostic%20Indicator%20Guidance%20October%202011.pdf]. Accessed 13 Oct 2015.


Page 2

Characteristics of the sample (n = 25)
Sex female/male 14 (56 %)/11 (44 %)
Mean age (range) 85 years (71–98)
Marital status single/widowed 20 (80 %)
Living situation  
 • Home 18 (72 %)
 • Assisted livinga/Nursing care home 7 (28 %)
Main care support  
 • Family 8 (32 %)
 • Spouse/partner 5 (20 %)
 • Nursing service 9 (36 %)

  1. aAssisted living = Institutions in Germany where persons live in their own apartment with optional care and household services