When working with a person with a disability What are the benefits of maintaining networks with other support service Organisations in your community?

The Benefits of Peer Support from JFA Purple Orange on Vimeo.

The information on this page is also available as a downloadable Quick Guide, by clicking below. There are PDF and word versions. 

What are Peer Support Groups - Easy Read (398.94 KB, pdf)

Introduction

A peer support network is where people get together as equals to provide support to each other because of similar experiences or circumstances in their life.

Wikipedia defines peer support as initiatives where colleagues, members of self-help organisations and others meet, in person or online, as equals to give each other support on a reciprocal basis.

While people may get support from other sources, peer support is different because peers are ‘in a unique position to provide support by virtue of relevant experience: he or she has "been there, done that" and can relate to others who are now in a similar situation’[1].

Peer support is considered to be a key component of the independent living[2] movement and has been widely used by people living with disability.

Let’s make it happen

There are a range of ways in which peer support networks can be of benefit to people living with disability and their family members. Evaluation data has shown tangible benefits are emerging for people who are members of peer support networks, in areas such as fellowship, information, increased confidence and capacity, social connection and leadership, including impact on disability service design, such as the NDIS and community accessibility.

There is also a theory about the effectiveness of peer support which identifies 5 areas of psychosocial benefits that derive from being around, talking to and associating with peers.

Essentially the theory is that hanging out with peers is a cool, fun thing to do and it also does good things like building individual capacity, providing emotional support, being able to help others and learning from others who have had a similar experience.  

This Quick Guide will look at each of the 5 areas in turn based on an article by Mark Salzer[3]:

1.      Social Support: peer support groups give social support to people which comes from being part of something, a sense of belonging, a feeling that people care about you and a connection to others. The supportive resources that come from peer support can be emotional, or practical such as gaining information, as well as providing companionship and connection to others.

2.      Knowledge gained through experience: peer support is unique because it is support through perspectives that people have from living through a particular experience. This makes it specialized knowledge that only people with a lived experience (of disability in this instance) can bring. It cannot be taught or learned, it has to be lived.

3.      Social learning theory: this is the idea that people can develop new and helpful habits by observing and learning from what other people do (sometimes called role models). If a person sees or hears peers doing something a certain way that seems to be helpful, that person may try the same things.

4.      Social Comparison theory: this is the idea that we all compare ourselves with others. It explains how, by making such comparisons, people can evaluate their own opinions and abilities. If people hold similar views then this leads to reinforcement and a building in confidence. If the views of others are markedly different then this can lead to someone testing and perhaps modifying their own view to help move towards their goals.

5.      Helping others helps you: this is the idea that by helping others we get a benefit to ourselves. Peer support has the potential to be mutually beneficial for all parties involved. It may be that a member of the peer support gets help from the group but also likely that at some point they will also be able to assist another member.  Doing this can be a real confidence booster, because it means the person has valuable experiences to share that can help another person along.

So that’s the theory but the reality is much more straight forward: people benefit when they  connect with people they feel are 'like' them. Peer support usually comes from a development of relationship and trust between members and a sense of solidarity. It can be informal and can take many forms such as face-to face meetings or online.

Peer support is seen as increasingly important because it acknowledges and uses the power of lived experience. This can reap many benefits both for the individuals and also for the wider community as people become more confident, capable and informed so as to influence their lives outside of the peer group. It doesn’t replace ‘experts’ or professionals but it is seen as a way of achieving positive outcomes.

Where you can find more information

There are lots of online resources about peer support.

Peer Connect has a great video about peer networks based on Families4 Families

https://www.peerconnect.org.au/

The Centre of Excellence Peer Support – Mental Health has great resources about Peer Support.  This page explains what peer support is

http://www.peersupportvic.org/index.php/2014-12-15-22-41-58/2014-12-15-22-59-27

It also has a Charter of Peer Support:

http://www.peersupportvic.org/index.php/2014-12-15-22-41-32/2014-12-15-22-46-46

Peers for Progress - is a website all about peer support

Dept Human Services – Victoria, Australia

Peer Support Guide

This guide is for people with a disability and their supporters. It tells the story of how people who receive disability supports can share what they know about self-directing their supports. It acknowledges the collective wisdom that people with a disability and their supporters hold, and the benefits of people sharing that wisdom and personal experience with each other.

The guide explains what peer support is and provides ideas about how to do it. The Department of Human Services believes peer support works best if people themselves take control of it. Through this guide, the department recognises the value of peer support and encourage people to give it a go.

The guide is also for disability support providers who would like to do more to empower people with a disability and their carers to share their knowledge and experience with each other.

http://www.dhs.vic.gov.au/about-the-department/documents-and-resources/policies,-guidelines-and-legislation/peer-support-guide

Peers for Progress - is a website all about peer support

http://peersforprogress.org/learn-about-peer-support/what-is-peer-support/

SHARC - is an organisation that advocates peer support for people and families impacted by drug and alcohol misuse.

http://sharc.org.au/peer-support/

Mental health sector – information on peer support within the mental health sector

http://www.mhpod.gov.au/assets/sample_topics/combined/Supporting_a_Mental_Health_Peer_Workforce/objective1/index.html

Peer zone

http://www.peerzone.info/

Brook Red http://www.brookred.org.au/peer-support

[1] https://en.wikipedia.org/wiki/Peer_support

[3] Salzer, Mark (2002). "Consumer-delivered services as a best practice in mental health care and the development of practice guidelines". Psychiatric rehabilitation skills. 6: 355–382

For every five Australians, 1 has some form of disability. From struggling for equality in the workplace to constant healthcare, people with disabilities deal with many challenges in their daily life. The result of all this is can be loneliness and, potentially, depression.

Research shows that people with a disability experienced low perceived social support, loneliness, and social isolation at higher rates than people without disabilities.

Luckily, community participation can assist such individuals to cope with challenges and help people living with a disability lead more independent lives. What exactly is community participation, and how does it benefit people with disabilities?

What is Community Participation

Community participation is the involvement of individuals in community projects and entails giving all individuals the opportunity to participate in activities that can have a positive effect on their health or lives in general.

Some factors that encourage community participation include the traditional, religious, and social obligation for mutual help and the need to belong to a specific group. For people with a disability, community participation gives them a sense of belonging and increases their ability to live independently.

Disability community participation encourages members to work in areas that improve their life skills by participating in various activities such as shopping, communication, swimming, horse-riding, and cooking.

Benefits of Community Participation to People with Disabilities

We can all agree on one thing– social interaction is crucial for our health and day-to-day life. If you or your loved one have any form of disability, community participation could be the key to leading an independent and happier life. Some of the benefits of community participation include:

•       Promotes independence: Community participation allows individuals with a disability to interact with others and move independently without any support. This means your loved one won’t have to depend on others to shop, eat, or interact with friends.
•       Improves social and life skills: Community participation enhances the life and social skills of individuals living with disabilities. It allows people to engage in activities like planning and executing community projects and enhancing community engagement. As a result, their self-esteem increases, improving their communication and relationships with others.
•       Reduces the risk for mental disorders: Due to social isolation and loneliness, people with disabilities are more likely to develop mental disorders, including depression, anxiety, and dementia. Through community participation, people with disabilities create a network of support systems that help them prevent mental illnesses.
•       Promotes positive attitude: Community participation provides individuals with disabilities with a sense of belonging. These individuals develop a positive attitude by participating in community activities such as planning, building, communication, or horse races.
•       Reduces further accidents: Community participation involves providing mobility services to people with moderate levels of disability like hearing or vision impairment and can help mitigate the risk of future accidents.
•       Benefit the community as a whole: Participating in community projects and events is good for others and the community at large. Including people with disabilities in community projects, increases participation in the workforce.
•       Breaks stereotypes: Unfortunately, there’s a stereotype associate with people living with a disability that they may be less capable than others. Community participation creates a better network amongst individuals, thus, breaking untrue and unfounded stereotypes. 

What’s Next?

Increasing and promoting community participation for people with disabilities can significantly benefit their lives, including enhancing their independence and well-being. What’s more, supporting community participation has improved the quality of life of carers and the country’s economy.

If your loved one has any form of disability, make a point of encouraging them to join a community participation program. If you’re in Australia, OSAN’s community participation programs may be right for you.

Being NDIS approved, we’re dedicated to providing you or your loved ones with many opportunities to take part in your local community, interact with friends and family, improve your critical thinking skills, and enjoy your best quality of life. Contact OSAN ABILITY today for more information.